At least it felt like a long time. At this point she wasn't sure how long. She vaguely remembered happy times. But it was as if those happy times were through ten feet of cotton candy and her life now. She could see herself laughing in some photos, but couldn't figure out what that felt like. Yes, she had been happy, but not in a long, long time.
Her living room and kitchen were immaculate. But that was because she didn't have the energy to leave them messy. When she ate – everything was cleaned and put away before she fell asleep. And she didn't buy any food that might go bad. The dried milk she kept on hand didn't taste all that good when she made it up for the meal – it was supposed to sit – but when she had the energy to eat and clean up she wanted to do it then. If she waited any time her burst of energy would be long gone and then there's be the dishes to clean and they'd sit. She'd done that before when she'd tried to wait. And the dishes would sit with the big round eye of a plate accusing her of not doing anything and her mind quivering with the blows of unmet expectations. And she just couldn't face the unwashed dishes one more time. So she made the dried milk up and drank it before it had cooled and as the horrid taste went down – thought – at least I got something in my body one more time.
And at times it was a moment-by-moment decision to keep on existing in such pain. She'd started treatments but so far none of them had worked. And she lived in pain. And she could no longer remember what it had been like before she lived in pain. And the treatments – try this drug and it will take two to six weeks before it works – you've been taking it for eight weeks and there's no change, then stop taking the drug and in two weeks will try another drug – seemed futile. And every day longer until each day seemed like years.
They called it depression – she called it pain.
And she lived with it.
Today she was curled up in bed. Her book club was at noon, but she hadn't read the book and she wasn't sure she could go because she didn't want people to know that she hadn't read the book. It was six in the morning and the book had arrived. The package was sitting next to her bed. But she'd only opened it enough to see the spine and then had let it lie there, accusing her, saying she should just reach out and begin reading it, letting her know how worthless she was since she couldn't reach over there. Instead she tossed and turned and even when she wasn't looking at the book the thought of it ate at her, the acid of not getting it done rising up in her throat and burning so that she couldn't sleep, but couldn't pick up the book.
And she thought – I could call Angie, but I've already made too many excuses for not reading the books. And I've called her too many times. And if I keep calling her she might not want to hear from me again. And I don't want her to see me like this. And maybe I just won't go, but I've missed too many meetings already. And it's too early to call her, but I've missed too many meetings, or I've been to them and not read the book and I just can't do it, but I don't want to miss the meeting and the book is sitting right over there so if I start reading now I could at least pretend to know what the book is saying, but I can't concentrate enough to read and besides my comments aren't as good as those of the other people and can't be since I haven't read the book and the books been sitting there for two weeks but I just haven't had the energy, but I'm perfectly fine so I should have read the book and then I wouldn't have to call Angie and cancel but I still haven't cancelled so!
I could go but then I'd be unprepared and everyone would see what a mess I am.
And it was six-fifteen in the morning and she did not have the energy to get out of bed or to grab the book and yet she was tossing and turning and wondering if she could get out of bed today.
Once upon a time she thought that she would have thought nothing about getting out of bed. And she wondered why it seemed so hard to do, but it did. She was wrapped in a cocoon of frustration and anger and despair and it was torturing her to move and sit up and swing her legs over the bed and she dreaded the day and what would come and what would happen and whether she could actually do something. And she thought, I've got a doctor's appointment today so I don't need to actually go to the book club. I can tell them I'm waiting and they'll understand and then I don't need to read the book, but I do want to read the book and I do want to keep up with things, but how can I keep up with things when I can't concentrate on anything and it takes so much energy and I've been up since 6am and I just can't get out of bed and I used to be able to get out of bed in the morning but it seems like so much work.
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